Okay, I am officially a Hawk Eyes fan! Who would have thought Iowa City would be such a wonderful place. I really enjoyed our visit there this past week. And the news that they (UI) have figured out a way to do kidney transplants in patients with aHUS......well that is icing on the cake!
I did not go to Iowa expecting to here anything different from what I have been told by other major transplant facilities. But Iowa really seems to have this aHUS mess figured out. There is still a lot to learn about it of course, but I think UI is leaps and bounds ahead of anyone else in the country that I know of. I met with the aHUS expert, which was a real treat in itself. I felt like I was meeting a celebrity. Pretty much everything that is known about aHUS is thanks to him and his team. I also got to meet the head of Nephrology and Chief of Transplant Surgeries. I got a real good feeling from all three of the doctors. I felt safe and assured that they really get this aHUS and most importantly, were able to explain things to us. All of the doctors, nurses and staff we met were so nice and polite and willing to help in anyway possible!
I had 18 vials of blood drawn, EKG, and a chest Xray. They still need to do further testing to make sure I am a good candidate for transplant. I should know in the next few weeks what the future holds. I am just so thankful I had the opportunity to meet the experts on my diagnosis and learn more about it. A transplant will happens at some point. The science is getting so close.....it may be already there in Iowa!!
As the story with Iowa unfolds, I will keep you up to date with whats going on. But things there look really promising....and that's is all I need!
Linda Burke left a comment for Jeff Wilhelm
1 week ago