June 15,2011

Today at 7 am we were at the hospital waiting to get a cathedar placed in my neck/upper chest area. Surgery didn't start on time due to a staff meeting. Finally at 8:30 they took me back. My surgeon was only 27 years old! I thought doctors were suppose to be older than their patients??? Guess this is a sign that I am getting older! Anyway, the cathedar was placed in my internal jugular vein. I am very sore and it hurts on my right side. I feel like I've been hit by a truck....but it is only temporary pain. I had a ton of labs drawn today but they can use this cathedar to get them so no more sticks!!! Tomorrow I have plasmaphersis at 10am. That should last 2-3 hours and then at 1:30 I have my first soliris treatment. And then more labs...Will try to update how tomorrow goes. Thanks for all the prayers! Keep praying please!!! xoxo