June 16, 2011 Update

Yesterday was a rough and packed day. I had to be at the hospital at 10am to begin plasmapheresis. It was a 3 hour treatment. It went smooth until the last 20 minutes. They had to stop the machine bc I starting feeling sick. Then they kept me there for about an hour which made me late for my next treatment. Got to my next treatment in the infusion center and got my first dose of soliris. The treatment only took 35 minutes to administer but I had to wait an hour afterwards for possible side effects. I did not have any! YAY!!!! We were at the hospital for 10 hours! Got back to our hotel and starting puking. So then I started dialysis for 9 hours. So I had treatments back to back yesterday. My body was worn out! I did get to see Dr. Thomas who is one of my main doctors. He is a nephrologist who is coordinating my schedule. He is an awesome doctor!!!!