I got my PET results in and they amaze me. A lot of what I might say may be hard to understand, it is a lot PD dialysis lingo but you will get the point. For 10 months, I did PD through the Jonesboro clinic. I did a series of 5 cycles at night, for 8 hours, using (1) 5L bag of 2.5% solution, (1) 3L bag of 2.5% solution and (1) 1L bag of 4.25% solution, then I would dwell 1000ml during the day. This, apparently, was enough to keep me alive....but not much more. My blood work from the PET test revealed I was uremic and I had a creatinine of 16. To be frank, I was underdialyzed the entire time I was on PD here in Jonesboro. There is no wonder I puke every day and feel so yucky. Those poisons have just been building up in my body for nearly a year. What is so sad is the Jonesboro clinic could have fixed this.....it's not rocket science after all.
My new regimen following the PET is much more dialysis. My body has adjusted amazingly well to it. Now at night, I have (2) 5L 2.5% and (1) 1L 2.5% solutions and I do 4 cycles at night. During the daytime I dwell 2000mls. I carry around 4 pounds of fluid during the day but I am getting use to it. I will do whatever it takes to get a good clearance. According to the PET formula, I should be getting a clearance of 2.2 which is above Medicare standards. Medicare wants the minimum to be 2.0.........which I never obtained in Jonesboro.
I also have to get a weekly shot of epogen. This helps build up my red blood cells. I only got monthly shot in Jonesboro. I do hate shots, but I will do whatever it takes to make me better.
I had a very in depth conversation with the dietitian, regarding my diet, which was nice to have. She was a well of knowledge when it came to the renal diet. All of this was a nice change compared to Jonesboro. It is just day and night when you compared Jonesboro health care to Memphis.....regarding dialysis.
So, I feel really comfortable now having done the PET. I know I am getting an adequate treatment at night and I have a team of professionals doing their job. Great Feeling!
Linda Burke left a comment for Jeff Wilhelm
5 weeks ago