Jill's Kidney Blog Follow by Email: Type in your email address below and click submit

Countdown to Kidneys Being Included.......

Wednesday, January 26, 2011

Ups and Downs

Lots of things are going on with me right now. As I type this I am in bed sick with lots of vomiting and low blood pressure. Yesterday my BP was 61/50. It hasn't been that low in a long time. Today it is up to 90/69. Still low but better. The vomiting is worse today than yesterday. Good news is the dialysis clinic thinks they know why I am puking so much more here lately. Bad news is I have to increase my dialysis time to feel better. Which means I will be on the machine at night longer than my usual 8 hours. But I have been lucky to have only been on it for 8 hours a night. Many people I know dialyzes much longer than that.

More "down" news is I am not too thrilled about this new Frecenius machine. I had gotten really attached to the Baxter machine and hated changing. I knew changing machines would be an issue for my temperamental blood disease. I think this new machine is part of the reason I am puking so much more. It actually has a pump that pulls the fluid and my body feels like it is pulling too much. But I will adjust to it. It's just going to take time. I am already on my 2nd machine in 48 hours of being on a Frecenius cycler. The first one was so loud. Chris slept on the couch the first night it was so loud. But within 3 hours of calling the company, a new machine was at my door. That's customer service!!! Who knew you could get a dialysis machine delivered to your door in about the same amount of time as a pizza!

So enough with the down news. Good news is I have had labs drawn and sent to the Blood Center of Wisconsin to start tissue typing and testing for potential donor capability. I am praying I hear I have a match soon! So far, I have one person who has gone through the process to be a donor and she is an angel and a blessing. I have a gut feeling she will be a match. I know God is watching out for me and clearing a path to make this transplant happen.

I have also had many letters written to help me get the drug Soliris that I desperately need for this transplant to be a success. So I have done everything possible on my end to facilitate this transplant. It is now in the hands of others to make a decision. I feel a peace about the whole situation. And I will keep the blog posted as soon as I start hearing news. Please pray that my potential donor is a match and that I get Soliris approved.

No comments:

Post a Comment